Where people with ITP, healthcare professionals, and caregivers get and give advice.
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If you have ITP, carry a medical alert card in your wallet that says what you have and whom to contact in case of emergency. If you're not someone who has a wallet w ... read more
Terry B. Gernsheimer, MD
Hematologist and professor of medicine and hematology at UW Medicine in Seattle Healthcare provider for ITP
3
Please take care of yourself -- this disorder makes you ill 🤒. I recommend an ITP DIET. Avoid processed food and choose forest-grown and field-grown food.
SYED MUZAFFAR
Care Partner for ITP Age: 23 Male
6
QUESTION OF THE DAY:
Do you try to cover up bruises and petechiae from ITP? Help others do the same by sharing your go-to tips.
If you have ITP, the most important thing you can do is tell your healthcare provider about every medication you take -- including supplements and over-the-counter m ... read more
Gwen Nichols, MD
Chief Medical Officer of The Leukemia & Lymphoma Society Healthcare provider for ITP Female
4
If you're a woman living with an autoimmune disease like ITP, talk with your healthcare provider about hormone levels. If your menstrual cycles are irregular, you ma ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
2
Tell your healthcare provider about any changes in your body, like changes in bowel movements or an increase in headaches, joint pain, or fatigue. These can help us ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
2
Having a good foundation of wellness and nutrition and managing stress is essential for anyone who has an autoimmune disease like ITP because all lifestyle issues im ... read more
Wendy Ellis, ND
Seattle-based practitioner Healthcare provider for ITP Female
3
Open up about about ITP. Many people don't know what ITP can do to a body so it's good to speak about it. Also helps you in the future.
Sue
Living with ITP Age: 32 Female
0
Fast Fact
ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S.
National Organization for Rare Disorders
<p>ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S. </p>ITP knocks down platelets … people who have been diagnosed with ITP always want to know how to make more platelets….but you can’t really eat more papaya (or any othe ... read more
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
5
Make sure to eat on a regular schedule; no intermittent fasting! Regular, steady intake of balanced meals (think: protein, whole grain carbohydrates and unsaturated ... read more
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Age: 38 Female
4
If you've been diagnosed with ITP, talk with your healthcare provider about screening exams for H. pylori, shingles, and hepatitis C, as infections like these can tr ... read more
Wendy Ellis, ND
Seattle-based practitioner Healthcare provider for ITP Female
1
Inflammation can be quite damaging in the context of a wound. A lot of swelling and redness comes from inflammation, and an ice pack can slow that down or prevent it ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
2
I’m a huge fan of educating yourself to really understand what’s going on. I think it makes you more susceptible to complications if you don’t have awareness of what ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
4
Be careful not to bump into doorways, sharp corners, etc. Having ITP means it's easy to bruise. I have found that "rubbing" the spot if you bump it does help. The ol ... read more
Care Partner for ITP Age: 90 Female
4
Most forms of physical activity are safe for the majority of people who have ITP. You just need to be more deliberate about how you’re participating in your sport. F ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
3
Meal planning and meal prep are so important for people with ITP. I recommend “Meal Prep for Beginners” by Toby Amidor, MS, RD, CDN and my book, too, “The Anti-Infla ... read more
Ginger Hultin, MS, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
3
Medications like aspirin or ibuprofen, and some supplements like fish oil, alter the way platelets work, and so they can potentially put someone at increased risk fo ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
4
Fast Fact
ITP can be chronic or acute, but adults are more likely to develop the chronic type.
National Heart, Lung, and Blood Institute
<p>ITP can be chronic or acute, but adults are more likely to develop the chronic type.</p>Find a doctor who is willing to work with you to find the right treatment. Every ITP patient is different, and what works for some patients may not be ideal for you. ... read more
RareCandace
Living with ITP Age: 34 Female More than 5 years
4
If you suffer from frequent nosebleeds, running a humidifier and using saline (salt) nasal sprays to moisten the nasal lining can help reduce the frequency.
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
4
Poll
Does food help you manage ITP?
I was diagnosed with ITP at the age of 12, and since then I have been living with this rare immunity disorder. So here I am to share a few tips with the brave hearts ... read more
Ipsita
Living with ITP Age: 20 Female
1